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Posts Tagged ‘sensory child’

Aug
22

Rob’s Disorganized Brain

Posted in Child Development

A couple of days ago I blogged about how we taught Rob to put together simple sentences by lots of repetition and modeling. I promised to tell you why that worked. So, here we go.

How the brain processes information
Anything that we hear, see, feel, touch, or taste in our environment is called a sensation. Sensations are picked up by receptors (located in our eyes, ears, skin, muscles, etc.) and are changed into electrical impulses that travel through the nerve fibers to the brain.

Electrical impulses travel from one neuron to the next via “bridges” called synapses. An infant is born with most of the neurons he or she will ever have. (About 12 billion of them!) However, at birth, there are very few synapses between the neurons.

Every time a child has a “sensory experience” (is exposed to things like light, touch, sound, movement) new synapses are created. The more of these neural connections a person has, the more capable of learning he is.

Once inside the brain, the electrical impulses are sorted, organized, combined with other pieces of sensory input and then put to use. Over 80% of the nervous system is involved in processing or organizing sensory input. It’s a very complicated process.

Behavior and learning are the visible expression of the invisible activity going on inside the brain. When the visible expression does not produce the outcome we expect, (in Rob’s case, he couldn’t answer “My name is Rob”, even though we knew he knew the answer) we know that the neural messages are not crossing the synapse “bridges” they should, but are getting lost somewhere.

Forming strong synapses
As the neural messages are forming new pathways across the synapses, it takes about 75 millivolts of electricity to get the brain’s neurons to fire. In order to form strong neural pathways, an activity must be done repeatedly. (Which is why children naturally like to read the same book, sing the same nursery rhyme, or play with the same toy ad nauseum. They are creating well-formed synapses.) Eventually, the energy required to fire a brain’s neurons is significantly less.

Additionally, the brain likes and looks for patterns – it doesn’t have to work as hard when it recognizes a pattern. Patterns are also one of the brain’s primary ways to process new information – it looks for information it already knows to “make new information fit.”

A disorganized brain
During the first 7 years of life, a brain’s primary job is to process and organize sensory information. When sensations are not being well-organized, it’s like a traffic jam inside the brain. Language is one of the more complicated functions of the brain, and so more neurons are required to transmit the messages.

It is very common for children with sensory integration disorders to have language development problems. Remember, behavior and learning are the visible expression of the invisible activity going on inside the brain.

Pam (Rob’s Speech Therapist) thought that Rob had some sort of auditory processing disorder – which in its simplest definition means that his ears and brain didn’t coordinate.  He couldn’t be tested until he was school-aged, so we didn’t know for sure.

However, Pam did know that if we could model the language patterns (over and over and over again), he could learn them. I know now we were somehow helping the synapses to form – we were helping his brain to become organized. And it worked.

Are we done yet?
I was hoping that speech therapy would fix whatever was wrong. I was pregnant with my third child by this point. I was homeschooling my oldest, going to speech therapy twice a week, running a new business (Studio3Music), and throwing up multiple times every day. (For 9 long months.) I didn’t have time for all of this!

But there was still something not quite right. I was horrified when one day Pam suggested that maybe Rob would do well in a “special-needs” school. Her gut instincts told her we were missing a piece to the puzzle, but she didn’t know what it was. She then suggested that we have Rob evaluated by an OT. (Occupational Therapist), as he seemed a little “floppy”.

Now seriously, I thought OT’s were for people who had had strokes or bad car accidents. So I turned to a trusted friend – the one person other than my husband who knew Rob almost as well as I did – Miss Allison, Rob’s Kindermusik teacher. At this point, Allison didn’t know much about sensory integration (she sure does now!), but she knew a lot about kids.

Rob was doing a 5 day Kindermusik camp that summer, and was just moving up to the next level – where  attended most of class without me. He was having a very had time with this transition, but we were working through it. I’d hand him over to Allison with a kiss and a hug, and then listened to him howl from out in the hall. (But this is a very important part of the development process, so we worked through it. By the end of the week, he was transitioning just fine, and loving being with a peer learning group.)

Allison said that when I handed Rob into her arms, she expected that he would go stiff and fight her, as a child his age would normally do. But instead, he would go floppy. Based on that little piece of information that matched what Pam said, we made an appointment with an OT. We had no idea what to expect.

­-posted by Miss Analiisa, who will introduce you to the wonderous Miss Vicki next time.

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Aug
16

Two word sentences – at last.

Posted in Bits and Pieces, Child Development

I’m going to dedicate some time over the next couple weeks of blogs to the continuing story of Rob, my sensory child. If you’ve missed the first two, click on the “sensory child” tag at the bottom of this blog and you’ll find them. I’ve gotten many emails from parents who’ve sent the first two along to friends who are struggling with your sensory children. I’ve spent countless hours on the phone with Kindermusik moms who are walking along the same journey. Know that you are not alone. I hope these blogs give you hope, encouragement, and even some helpful information.

I told you in the last post that deep down inside my momma heart, I knew something wasn’t quite right with Rob. I couldn’t put my finger on it, but it was obvious that his speech wasn’t where it should be. I asked around and by divine appointment (because I literally don’t know else how to describe the series of events that enabled us to find and get an appointment with her), we landed in the office of Pam Marshalla.

Rob at just over 3 years (and big brother Nathan) around the time he started speech therapy."Get off me!" would have been a good first 3-word sentence.

Pam has been an SLP for over 30 years. She is also an author and well-known international speaker and teacher. We walked into her office, which was full of toys and other wondrous things. What she didn’t do was any formal testing; what she did do was just get down on the floor and begin playing with Rob, conversing with him all the while.

Later I asked why she didn’t do any testing. She said that she’d been an SLP so long that she could pretty much figure out what was going on by being with the children and relying on her intuition. She was right.

Now this was a child (as you remember from before), that strung syllables together in really long sentences that we mostly didn’t understand, or only the first or last words were intelligible. But they were obviously sentences; they had words and inflection. We just didn’t know what they meant. The words were somehow jumbled up or squished together in the middle.

Pam knew that if she could just get two word sentences out of Rob it would be a start. And wonder of wonders, she did! “Plane flies.” “Truck broken.” “Stop, car.” We were unbelievably thrilled. And the next week more two word sentences came out. In fact, she told us she wished she had videotaped Rob. Never in her 30 years had a child improved so quickly!

We thought we found the solution to Rob’s “issue”. (Whatever that was.) As time went on, Pam told us she thought Rob had some sort of Auditory Processing Disorder, but he had to be 7 before they could test him.

Rob knew the answers to the typical questions one might ask a 3 year old. “How old are you?” I am three. “What is your name?” My name is Rob. But somehow, he couldn’t take the words what is your name apart in his brain, and re-arrange them into the spoken words “My name is Rob”.

I spent weeks modeling these sentences to Rob. “What is my name?” My name is Mommy. “What is your name?” “Now, Rob says”:  My name is Rob. Slowly, it began to work. Next time, I’ll tell you why.

­-posted by Miss Analiisa, who can look back now over the four intense, very expensive years of therapy and see that it was so worth it.

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May
12

Is there something wrong with my child, or is this normal?

Posted in Child Development, parenting

As promised, here’s the start of our story of our sensory-child, Rob. But we have to begin with my oldest, Nathan.  Nathan was just-turned-three when Rob was born. Nathan was a high-needs baby (though I didn’t realize it until years later), who wanted to be carried all the time, napped for only 20 minutes at a time until he was 9 months old, and never got the hang of independent play.

Nathan didn’t really talk until he was 26 months old. Then he began to speak in paragraphs. I’m not kidding. At 2 ½ he was discussing the purpose of umbilical cords with full medical terminology with my OB. Seriously. By the time he was three we were told he had a 10,000 word vocabulary. A typical 3 year old has 200 to 300 words.

There were days (many of them!) where being Nathan’s mommy left me totally exhausted. Lawrence Kutner, a well-known child psychologist said, “The fundamental job of a toddler is to rule the universe.” I swear that if we had let Nathan onto the internet, he would have located at least a small country to run.

Rob at just turned three.

Everything was different about Rob. It was a relatively easy, 5 hour delivery (no drugs!), his Apgar scores were 9 and 10, he was absolutely gorgeous, he slept well, ate well (though he did have a clear preference for all foods crunchy – though more about that later), and was so content and easy-going.

He said his first words, “Jack cat”, at 9 months, exactly as Nathan did. His first sentence at 11 months was “I love you”. To the cat. Exactly as Nathan did. And then we had some more words, but that was about it.

Rob was my happy go-lucky little boy who played well on his own, didn’t fuss a lot, and was pleasantly quiet to drive with in the car. He charmed and flirted his way into many people’s hearts. But by the time he was 2 ½, I realized that although I could understand him, other people couldn’t. But I figured that was “normal” 2 ½, not “Nathan-normal” 2 ½. Rob and Nathan were already like oil and water (they still are!), so I thought that maybe Nathan was just an “advanced” orator, and Rob was simply a typical child.

You know how when you are at the grocery store or bookstore, people start asking your young children questions like, “What is your name?” “How old are you?” Well, by the time he was three, people were asking Rob those questions. And although I knew he knew the answers, he couldn’t tell them. Rob NEVER liked to perform on cue. So was this just “normal Rob”?

There were times when he spoke long complicated, entirely understandable sentences. And many other times we could just understand the first and last words. And other times he simply pointed to what he wanted.  I began to look around for a well-recommended speech and language pathologist to have him evaluated.

Shortly after that, I was confronted by several people who said that they were going to hold an “intervention”. Because Rob had “every sign of autism”. These were people who had not spent a lot of time with Rob. I was angry. I was furious. My heart was deeply hurt. How dare someone label my child? I knew they meant well, but I was still mad. And I just knew Rob wasn’t autistic. (And dragging up all those emotions 5 years later is really, really hard. Which is why I’ve been writing this post for the last week…)

But what was going on? Was there something really wrong? Deep down inside my Mommy heart, I knew the answer.

-posted by Miss Analiisa, who says that if you miss a blog installment of this story, she’s got them tagged as “sensory children”.

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May
3

What is Sensory Processing?

Posted in Child Development

In the midst of the Kindermusik Spring, Summer, Fall planning and registration, web-site updating, and TWO weeks of various children in my house with 104 to 105 degree temps, I’ve fallen off the blogging radar.

But, it’s relatively quiet today, so I’m going to begin again. I’ve been wanting to blog about my personal experiences with my sensory-child, but every time I sit down to do so, it produces such a hurt in my heart (thinking of all we’ve been through), that it’s just plain hard to start. However, a recent blog by one of my friends has re-inspired me, so I shall wipe away my tears and just do it.

I thought it would be good to start with a simple explanation of what Sensory Processing (sometimes called Sensory Integration) is.

Sensory Integration is the process where all the parts of your nervous system take in the information detected by your senses (sight, touch, hearing, taste, smell, proprioceptive and vestibular) and organize that information for your use.

When this process happens smoothly, you can climb a ladder, eat a piece of pie, build with blocks, interact well with other people or do a forward roll. (Maybe NOT at the same time, though!) This leads you to be happy, well-adjusted and secure.

Sensory integration is an unconscious process of the brain – we don’t think about it happening. Learning and behavior are the visible aspects of sensory integration. Reading, writing, and math require a great deal of sensory integration, and make very complex demands on the brain. If sensory integration is working well, children learn as we intend them to, and the process of learning is very satisfying to them. (There are other reasons for learning difficulties as well, but good sensory integration is necessary).

All children need sensory input and experiences in order to grow and learn. Sensations are “food for the brain”. They provide the knowledge needed to direct the body and mind.

Behavior problems such as inability to cope with stress or change, negative self-concept, fussiness or not enjoying play with other children or family members can be a result of poor sensory integration. Physical symptoms of poor sensory integration include: hyperactivity (sometime misdiagnosed as ADHD), distractability, poor coordination and muscle tone. Speech and language depends on many sensory integrative processes, so delays in speech and language or articulation problems are often indicators of sensory integration problems.

Research by the Sensory Processing Disorder Foundation indicates that 1 in every 6 children experiences symptoms of Sensory Processing Disorder that are significant enough to affect their ability to participate fully in everyday life.

If you see yourself or your child in these “symptoms”, please don’t panic! Only an Occupational Therapist or like trained professional can properly diagnose Sensory Processing Disorder. And, as Rob’s OT explained to me, everyone is somewhere on the sensory scale. Everyone, at some point, has difficultly processing sensations. Perhaps you don’t like the sound of a shovel scraping against a rock? You don’t like the feel of scratchy clothing tags against your skin? The auditory and physical sensations of taking the cotton out of a vitamin bottle?

-posted by Miss Analiisa, who promises to begin at the start of her journey’s story a bit later this week.

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